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Over time, wet macular degeneration can change aspects of your daily life, and no one can fully understand or relate to your experience as well as others who are living with the condition. Along with information from your doctor, support from the macular degeneration community can help you navigate the emotional and practical impact of wet macular degeneration. You may also find that staying active and involved in your local community, by taking classes or learning new skills, will help with overall wellbeing.
Here are a few ways you can make these connections.
Patient Advocacy and Support Groups
Speak with your doctor and search online to identify wet macular degeneration or vision loss support groups in your local area. These groups and their members offer extensive assistance and information. If you do not see any local resources available, you can get in touch with a national patient group – national groups that focus on wet macular degeneration can often point you toward resources in your community.
There are many social media platforms available, and they all help build connections in different ways. Facebook is the largest social media platform in the world. One of its key features is groups. Users can join virtual communities of people with similar interests and lifestyles. This includes groups for those with conditions like wet macular degeneration.
Many social networks have settings to help optimize the experience for those with vision loss, including larger text or high-contrast color schemes. Patient advocacy groups are a good resource for tips on how to best use these settings on social media channels like Facebook, Twitter and LinkedIn.
Community Programs and Activities
Local organizations and community centers provide diverse programs for members, including sport or fitness groups, art classes and other hobbies. Before signing up for a class, you can talk to the instructor to understand what options or modifications are available for people with low vision. Whatever you choose, the opportunity to learn something new with a group of like-minded individuals is a great way to form friendships and connections. Many universities also offer various classes for adults of all ages.
Behavioral Health Professionals
Living with wet macular degeneration can make everyday tasks more difficult. To help manage stresses and challenges, it can help to speak with a behavioral health professional. This person can help you find solutions, so you can continue to lead a fulfilling life.